Complex Regional Pain Syndrome

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Any advice on how to bear wearing #clothes with #ComplexRegionalPainSyndrome ?

Hi, I have #CRPS in my legs and it's spreading. I also have a bunch of other medical conditions like #EhlersDanlosSyndrome and #PosturalOrthostaticTachycardiaSyndrome and so on. So my current question is this: does anyone in a similar situation have advice on where to get soft clothes that won't aggravate the CRPS or require a lot of maneuvering of my joints which causes problems because of the EDS? Also I'm an ambulatory #Wheelchair user, so I'm seated or lying down a lot of the day.

Then there's the fluffy factor. I'm fluffy (sounds better than other adjectives, or phrases like plus size) and that adds a layer of difficulty in finding clothes. I have some of Torrid's super soft stuff, but the seams still bother me. I've found a seller on Amazon that has bamboo viscose sleep and kinda lounge wear.

The TMI bit: bras are unbearable for my ribs and my skin, but going without is not a great look when you've got fluffy breasts, too, if you know what I mean. And most of the underwear I've tried is terrible, digging in to my groin and causing abrasions that get infected.

Please advise, DM or reply I don't care which. I'm really frustrated with the whole thing.
Thanks!

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Any advice on how to bear wearing #clothes with #ComplexRegionalPainSyndrome ?

Hi, I have #CRPS in my legs and it's spreading. I also have a bunch of other medical conditions like #EhlersDanlosSyndrome and #PosturalOrthostaticTachycardiaSyndrome and so on. So my current question is this: does anyone in a similar situation have advice on where to get soft clothes that won't aggravate the CRPS or require a lot of maneuvering of my joints which causes problems because of the EDS? Also I'm an ambulatory #Wheelchair user, so I'm seated or lying down a lot of the day.

Then there's the fluffy factor. I'm fluffy (sounds better than other adjectives, or phrases like plus size) and that adds a layer of difficulty in finding clothes. I have some of Torrid's super soft stuff, but the seams still bother me. I've found a seller on Amazon that has bamboo viscose sleep and kinda lounge wear.

The TMI bit: bras are unbearable for my ribs and my skin, but going without is not a great look when you've got fluffy breasts, too, if you know what I mean. And most of the underwear I've tried is terrible, digging in to my groin and causing abrasions that get infected.

Please advise, DM or reply I don't care which. I'm really frustrated with the whole thing.
Thanks!

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Puzzled by Melanie R.

You held on-

to life’s puzzle pieces

when you didn’t know where to start.

One piece at a time,

could finally see-

through pain and the tears in your heart.

Each piece of His wonder,

the pieces of you-

Great Love in the darkest of skies.

No, you didn’t stumble,

brought healing from Father

when puzzled in pieces of life.

You rounded the corners,

when jagged and cornered;

they started to fit perfectly.

Each piece in it’s place,

God’s guidance and grace

with beauty of Psalm 17.

🧩❤️‍🩹✨💪🏻🙏🧬
#MitochondrialDisease #ChronicIllness #Gastroparesis #IrritableBowelSyndromeIBS #HypothyroidismUnderactiveThyroidDisease #HashimotosThyroiditis #RheumatoidArthritis #RareDisease #IdiopathicIntracranialHypertension #ChronicPain #ComplexRegionalPainSyndrome

(edited)
3 reactions